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SIGNIFICANCE OF THE CONFERENCE |
This initiative was born when We strongly felt the need to connect with more and more people: Survivors, Patients, Parents, Doctors,
Caregivers & Donors and to bring to surface unattended childhood cancer issues (Psycho-Social, Emotional & Physical) from the young patient’s point of view.
We know our caregivers do their best for us. But do they hear our voice? They talk over our heads about our treatment, options, what we must be feeling.
They think that if they pretend “All is Well” we will not know we have the world’s scariest disease.
Do they hear us? For those of us who survived do they know what the impact has been, the memories we carry? If they ignore our pain, we will not feel it!
Ask young Sonu, now 16, survivor of ALL (blood cancer), who described the procedures during his LMP at 11 years of age… “4 of them used to hold my 4 limbs down
and I lay spread-eagled like an animal…and the pain I felt was the worst imaginable. I will carry the scars lifelong.”
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| AIM |
With the idea of an Enriching Survivor Experience, this Conference will find survivors engage in Sharing of Information & Experience,
Cultural Interface & Capacity Building. Thus, build a voice for childhood cancer.
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OBJECTIVES
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1. Enlighten & update ourselves on the new developments on the Pediatric Oncology Front.
2. To Konnect with more and more people: survivors, patients, parents, doctors, caregivers & donors so as to widen our network.
3. To bring to surface unattended survivor issues (psycho-social, emotional & physical).
4. To spread the key message: CHILDHOOD CANCER IS CURABLE, in India’s worst-affected regions(Lucknow, Patna, Mumbai and Rohtak)
5. Parent Support Forum with a mission of unstinted support to the children under treatment in different hospitals and develop a network for the further improvements of the services.
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HIGHLIGHTS OF THE PROGRAMME:
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· Question & Answer Sessions with Doctors & Psychologists
· Team activities & Capacity Building workshop
· Experience sharing sessions
· Nukkad Nataks on various Survivor issues
· Release of Awareness material(literature/video/online network) on Childhood Cancer
· Survivor Awards
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NOTE:
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1st ICCSC:Feb 6th-7th, 2010 for childhood cancer survivors 15 years and above from around india.
Register before 31st jan: Megha Bahl 9990503800
RSVP: Neena Manchanda, Vice President:9810002791
Sonal Sharma, Director, Parent Support Group:9953591572
Meeta Khurana, Event Coordinator:9811655251
Dr. Rachna Seth, Assistant Professor, Division of Pediatric Oncology, Department of Pediatrics, AIIMS:9868397549
Email: kidscankonnect@cankidsindia.org
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BECAUSE WE
ARE ABLE ... BECAUSE WE CAN
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