1. Every year 300000 children , 0-19 years of age, are diagnosed with cancer worldwide,
2. 70-80000 are in India.
3. Survival Outcomes in HICs are 80-99%.
4. In India they range from as low as 20% in some centers to 85% in others.
5. But almost 60% children who may have cancer do not even make it to a cancer center anywhere.
6. Better treatment, care and support will raise survival outcomes to 60-65%.
7. But to get to global standards we must invest in research , quality care and impact assessment TODAY.
8. The most immediate and critical areas of research today are healthcare policy and systems research, and to the development of guidelines and standards, to improve access to care, survival outcomes and quality of life of children
with cancer and their families in India.
Resources such as funds, expertise, employee time, products etc. are spent to generate specific outcomes and it is important to measure and assess whether these resources have translated into desired outcomes. It is important to set targets, create benchmarks, track progress, undertake midcourse corrections and effectively cater to stakeholder needs. Program/Project/s Healthcare systems evaluation should capture both efficiency of a program and its effectiveness. Impact must be measured and demonstrated quantitatively and qualitatively. The process of undertaking an impact evaluation is as important as the end product. The program needs to be measured regularly and learning/findings integrated into programs.
Cankids is committed to research in-house & within the pediatric oncology community, including the IAP PHO InPOG* for multi center research, institutional research and research focused on health systems and policy dimensions of childhood cancer in India.
QCRI conducts and/or facilitates all research projects being done within Cankids or national/international collaborative projects where Cankids is contributing patients or being a study sponsor.
At any given time there are several small and large, single/multicentre studies underway. These studies have to all relate to children with cancer but are diverse in their methodologies (qualitative, clinical trial, epidemiological, survey, etc.) as well as in their scope (answering novel questions, setting/measuring standards, evaluating service, impact assessment, etc.)
Dr Ramandeep Arora
Honorary Head, Quality Care, Research and Impact Analysis, Cankids India, New Delhi
Senior Consultant, Paediatric Oncology, Max Super Speciality Hospital, New Delhi
Executive Committee Member and Epidemiology Group Chair, Indian Pediatric Oncology Group (INPOG)
"I have done my initial paediatric training in India and then went to UK for further training in paediatric oncology and cancer epidemiology. Having spent 11 years there I moved back to India in 2013 and have joined Max Healthcare, New Delhi as a consultant paediatric oncologist and the Cankids QCRI Department as Honorary Head.. My main area of interest is childhood cancer with a specific focus on paediatric oncology in developing countries and childhood cancer epidemiology. I am also interested in understanding the phenomenon of refusal and abandonment in treatment of childhood cancer in developing countries and to develop interventions to deal with it."
(Medical & Psychiatry)
Social Worker (Quality Care Research & Impact Program)