"Capacity Building Workshop for Pediatric Cancer Support Services & Pediatric Palliative Care Project"
14th - 15th December 2010, New Delhi, India
Realizing the lack of emphasis and understanding of the importance of palliation in India,
CanKids...KidsCan organized its 1st Pediatric Palliative care workshop in November 2009,
which offered an introduction to palliative care for children with chronic illnesses,
psychosocial care, communicating with children and their family and ethical issues.
With the guidance of our last workshop, we took several initiatives in our Palliative care project.
There was a need now to improve our standards of care and support further and explore the
challenges most relevant to working with cancer-affected children in terminal phase & also to come
up with more practical solutions required in the field.
Therefore, a 2nd workshop was organized as a step ahead towards improving our services by
building a greater knowledge of current palliative care practices for children suffering from
cancer. The specific focus areas were pain management, alleviation of physical symptoms and more
proficient communication skills for the team.
The Workshop was provided by Dr Anjay Babu Sadasivan, CanKids Pediatric Palliative Care
Physician & Palliative care consultant - GCCI, New Delhi. He was supported by Dr. Amita Mahajan,
Senior consultant & Pediatric Oncologist - Apollo Hospital & Cankids Vice president, Technical
and Dr Sindhu Nair, Oncologist and Palliative Care Physician , Global Cancer Concern India.
The key points of the discussion included the basic principles of pediatric palliative care,
the importance for us as Support Group to understand the cancer terms and topics, ways of
dealing with communications issues in palliative care, Symptom Management
(Nutrition/Hygiene/Psychological) and advocacy measures for pain management.
The first workshop was a primary understanding of the issues involved in the field of pediatric
palliative care. This 2nd capacity building workshop was a level up, in that, it imparted
training on how to cater to those issues discussed in the first workshop. It was an attempt to
equip the caregivers with more effective in hand practical methods of providing physical and
psychological care to the children and their families facing the last stage of cancer. With
the simple language, illustrative presentations and real case studies used, the effort became
all the more fruitful.
From here on, in the quest to improve their standard of support services, the Cankids team of
caregivers now moves into the action-field with some first hand tips from renowned professionals.
Hopefully, the focus will gradually shift towards the needs of the care-givers themselves by the
time of the next workshop.