CANKIDS KIDSCAN
  • Home
  • How We Work
    • Operating Model
    • Team CanKids
    • Annual Reports
    • Milestones
    • Policies
  • Childhood Cancer
  • Our Services
    • COVID19
    • National Outreach Program (NOP)
    • Medical Project & Support Services Program
    • Treatment Support Program
    • Education & Reintegration Support
    • Quality Care Research Impact (QCRI)
    • Capacity & Skill Building
    • Communication Education Public Awareness and Advocacy
    • Pediatric Psycho-Oncology Program
  • Donate
  • Get Involved
    • CSR and Grants
    • Partners
  • Go Gold
    • WCDICCD-2022
    • Pledge Your Support
  • Contact Us

Cankids Medical Policy

  •  Guiding Principles 
  •  What we support and what we don’t 
  •  How to apply for support 
<
>
Picture
  • Special ​Project
  • CanKids Hospital ​Support Unit (CHSU)
  • Outstation Request & Hospital Grant
  • Support
  • Don't Support
<
>














HL










​




























BMT



















​


​























​RB





















​

The Project focuses on three aspects: awareness, advocacy and patient support. We aim to create awareness about the disease amongst the general population, patients, parents and physicians. We also aim to advocate a standardized protocol for diagnosis and treatment for patients suffering from the disease. And, finally, provide support to families of children suffering from Hodgkin’s Lymphoma in the form of financial, medical and psychosocial assistance.

For patients enrolled in the InPOG-HL Study, we are committed to supporting:
  1. Chemotherapy medications if required
  2. Access to CT scans for staging and reassessment
  3. Access to radiation facilities if required

The CanKids BMT Project aims to make a difference in BMT in India through its ‘Awareness, Advocacy & Patient Support Program For Pediatric Stem Cell Transplant Support In India’.

  1. Advocacy to drive standards and guidelines : To advocate to centers and medical professionals for research, standard of care, unique needs of patients, infrastructural requirements compliant with international standards, creation of Indian Donor Marrow Registry and regulatory standards for cord blood banks.
  2. Awareness: To assimilate authentic information and create peer reviewed evidence-based guidelines and to create public awareness about the need of pediatric HSCT in India
  3. Patient Support: On occasions limited financial assistance may be given on the directive of medical advisory, this will initiate setting up a BMT fund for financial assistance of poor children before, during and after their transplants by providing relevant information, guidance, medical assistance and psycho-social support. To encourage HSCT centers to partner with us by subsidizing costs of HSCT for poor patients.
For further details click here (download BMT details )

Vision 2020 - Dr Santosh Honavar of CFS Hyderabad has created the Vision 2020 Document which outlines a clear proposal on how we can make IMPACT on RB in the next 5 years – both to save LIVES and save VISION. It outlines a clear path, timelines and a plan of action.

CanKids undertakes to provide/arrange funding for
  1. Patient Support for treatment, diagnostics and pathology, travel and lodging support
  2. Training/capacity building of medical and para medical staff at Centers and RIOs
  3. Social Support teams – social worker/ data entry operator
  4. Equipment and upgradation of infrastructure for which Centers would need to make a Business Case and proposal which would be approved and agreed to as a part of the RB Collaborative Network




​​


AT THE HOSPITAL


​​







​

You are Not Alone




​Program (YANA)








​
​Medical Support



​ Form (MSF)

​






​Emergency Fund
​


​









PPSA

​

​​






​

Doctor Clarification








Medical Committee



Meeting (MCM)







general Medical



Assistance Fund



(gMAF)


Adopt a Child



​Programme (AAC)




Pediatric Palliative



Care Fund


Follow-Up

​Patient registered at the Paediatric Oncology/Other Department 
  • In-house reference
  • Referred from outside
  • Direct Walk-in/ Word of Mouth

Our first interaction with the family through our Social Support Team aims to build a bond, hear the story and assess family need. For every child who requires assistance from Cankids, a Patient Information Sheet (PIS) is completed with the help of a psychologist. A key reason for filling the form is to convey the central message to families that “YOU ARE NOT ALONE”.


​On the basis of the PIS, an MSF is completed by the Medical Program Officer or Unit Coordinator. Details of treatment, assistance sought and funds spent already or available to the family are obtained. 

Emergency Medical Assistance (prior to processing the case) – provided in the CSU budget. It is Rs 5000/- for units out of Delhi and Rs 10,000/- for IRCH, AIIMS and SJH. 

Poor patient support assistance (PPSA) can be provided to family looking at the situation and income of the family. This helps provide support for travel, stay and food for those who cannot afford it. Amount can be sanctioned upto INR 3000 per patient, post which the case can be brought to the medical committee for further support. 

The next step is to get recommendations from the treating doctor – clarifications on prognosis, treatment plan and level of assistance recommended for each new case enrolled. 

Cankids Medical Committee (MCM) for final decisions as to what support will be provided
In our Delhi head office, medical committee meetings are held weekly. Here the committee decides, on the basis of expenditure likely/done on each child, which child is eligible for the Adopt a Child Program or general Medical Assistance Fund


A maximum of INR 30,000 will be provided under Medical Assistance Fund. Donors contribute a fixed amount to this fund and a variable number of children are supported through this fund

Any amount sanctioned above INR 30,000 are added to the CanKids adopt a child program. Through this program donors are encouraged to fund individual treatment of children

All pediatric palliative care cases will be supported up to the limit of INR 10,000. Children can also receive palliative care at our center in New Delhi

Follow up with families on monthly basis.

Outstation Request





DIRECT




CONTACT
​



​


PIS & MSF










​

NOP MCM







​




Follow-Up

Cancer Hospitals where CanKids does not have a formal agreement with Hospitals & Doctors they contact us through Internet / Email / Phone /Social Media. Doctors write to the medical program representative with a case summary to facilitation@cankidsindia.org OR headmedical@cankidsindia.org. The case is brought  to the Medical Committee who takes the decision

PIS and MSF form is sent to treating doctor to fill out

Medical team takes the case to the National Medical Committee after clarification received from the doctor about amount of support required. Medical Committee asks any queries that may pertain to the case. Medical team gets back to the National committee with response from the doctor and if required the case is also sent to specific committees for approval like BMT, RB. The National committee then either sanctions the funds/medicines or declines to support the case on the basis of their assessment

Medical team follows up the case on a weekly basis

Hospital Grant


























Medical Support








​














​



In those instances where Cankids has an MOU with a treating center for a special project and is giving direct grants to the Center, transfer will be through Demand Drafts in the Name of Unit Accounts or hospital account along with a letter which contains information and details on the usage of the DD
The letter containing above information will be sent to CanKids representative at the Unit and he/she will proceed for further action. In such instances where the funds are being provided for Medical Support, the Hospital would need to provide details of the  Utilization of Funds.  Patient wise utilization certificate will be obtained from the hospital concerned to the unit every three months OR on full utilization of funds OR on non-utilization of funds in the event of expiry of the patient or if treatment is discontinued, whichever is earliest.   If balance funds are available these do not have to be sent back to Head Office but will be adjusted against future Medical Support support being made by Cankids. No balance funds may be utilized without sanction from Cankids Head Office.  Further funds for any patient will not be transferred till such time as Utilization Certificates are made available for previous funds sanctioned.





























​ALL













​































​AML








​



​











​














Bone tumors












​





























Solid Tumors




: Sarcomas/




Wilms’/ Germ Cell




Tumor
​


Support that may




be considered on a




case to case basis


Help for Radiation




​therapy/ Surgery
























BMT











































In view, of the high cure rates we would try our best to support them in every possible way.
  1. We can support for chemotherapy drugs and drugs required for supportive care.
  2. With diagnostics, we can assist with immunophenotyping through the help of JDF at certain centers.  We can assist with BCR-ABL evaluation but not for other cytogenetics.
  3. As of now, we can support requests for conventional E.Coli asparaginase only.  The innovator Pegylated brand is beyond our budget and the generic version is currently awaiting Pharmacokinetic and pharmacodynamics evaluation.
  4. We would recommend sharing of vials on the same day for optimal utilization.  However, we would not recommend storing of individual vials for subsequent use except for GCSF.
  5. We will not be able to support for asparaginase vials during maintenance and would actively discourage this practice as current evidence does not support this practice.
 
MRD test can be approved for B Cell ALL patient after approval from Medical Committee and will be only supported in two approved vendors, one in Delhi and one in Mumbai. Samples can be transported as and when required.

It is envisaged that only centres equipped with supportive care services required for AML treatment will embark on treatment.
  1. Cytogenetics: we would consider supporting this only if it is evident that this will affect decision making for the patient at the treating centre
  2. We can support for chemotherapy with generic brands


It is expected that all patients will receive neo-adjuvant chemotherapy.  However it is paramount that the timing and modality for local treatment is planned at the time of diagnosis and initiation of therapy.
Sanction for requests will require the following information:
  1. Site of disease
  2. Metastatic or non-metastatic
(In view of the guarded prognosis of metastatic disease, it may be feasible to grant only limited funding to begin with need for reapplication depending on the response to initial therapy).

Plan for local treatment:
  1. Timing
  2. Modality of local treatment
 (It is appreciated that definitive planning may not be possible at the time of diagnosis but a tentative plan would be very useful).

Request for support for prosthesis for limb salvage will be considered on a case to case basis.  If approved, partial funding may be sanctioned for Adler prosthetic implants.
​
As of now, we are unable to support Autologous SCT’s for Ewings/ PNET/RMS

All these patients are expected to require multidisciplinary treatment.  The following information would be required:
  1. Site of disease
  2. Metastatic/ Non-metastatic
  3. Treatment plan including the timing and modality of local treatment

Venous access devices

SDP kits
​

For patients being treated at centers that do not have facilities for RT, help for this may be arranged at another center through Cankids.  

  1. Patients up to 21 years of age undergoing HSCT may be supported through this ‘BMT Fund’
  2. Support is limited to HSCTs performed in India at specialized centers that comply with the established standards of care, as defined in the Cankids  Minimal Standards of Care Document
  3. Autologous and sibling matched allogenic transplants are supported in accordance with Cankids Indications of HSCT guidelines document
  4. No more than 20% of the annual funds will be allocated to support HSCTs for non-malignant disorders (in view of our Society mission to support Cancer).  This allocation will be reviewed periodically as the Fund receives more support.
  5. Support will be available to the extent of the balance available in the ‘BMT Fund’ for the financial year.
  6. Support will be provided to families based on the necessity of the HSCT, the socio-economic condition of the family, the choice of transplant center and the support offered by the center
  7. All cases of Pediatric BMT supported by CanKids are subject to the Review of Medical Necessity Policy outlined above. 
  8. It is not feasible to support requests for second and subsequent transplants.  










​


​





​Requests we are


currently unable


​to support







​

​

















ALL Relapse



​



AML


Solid Tumors:


Sarcomas/


Wilms’/ Germ


Cell Tumor

  1. Unfortunately, CanKids resources and funding is limited, and thus we are unable to support all requests.  
  2. The following requests are generally not supported  by CanKids, unless there are special considerations, which would be reviewed on a case by case basis:
  • Blood transfusions
  • Bed charges
  • Non-generic brands
  • Costly medications e.g. Inj cladribine, IVIG, rituximab, temozolomide, Inj Caspofungin, Inj Liposomal Amphotericine B, bevacizumab, rasburicase, IV Voriconazole (however Amphotericine b and Oral Voriconazole are supported)
  • TKI’s (other than Imatinib)
  • Support for management of Hepatitis B + C infection 

We only consider patients who relapse at least six months after completion of therapy for treatment support.
In view of the extremely guarded prognosis of patients who relapse whilst on treatment, we can support them only in a limited way
We only support early relapse as a palliative case with up to INR 10,000


We would not be able to support for maintenance therapy for AML and would actively discourage this as current evidence does not support this practice

As of now, we are unable to support autologous transplants for these indications

    Need Help! Get in Touch!

Submit
​CanKids KidsCan - The National Society For Change For Childhood Cancer in India works across the entire spectrum of Childhood Cancer Care.

Through our signature program YANA - You Are Not Alone - we hold the hands of the child with cancer and family, and we partner with hospitals, medical professionals, and state governments to enable access and best standards of treatment, care and support.
Helpline : 9953591578
Head Office (Delhi): ​011-45512466, 011-45512467
Email: info@cankidsindia.org
​

For pan-India offices and contacts, click here.
© 2020 CanKids KidsCan | Privacy Policy | FAQs
  • Home
  • How We Work
    • Operating Model
    • Team CanKids
    • Annual Reports
    • Milestones
    • Policies
  • Childhood Cancer
  • Our Services
    • COVID19
    • National Outreach Program (NOP)
    • Medical Project & Support Services Program
    • Treatment Support Program
    • Education & Reintegration Support
    • Quality Care Research Impact (QCRI)
    • Capacity & Skill Building
    • Communication Education Public Awareness and Advocacy
    • Pediatric Psycho-Oncology Program
  • Donate
  • Get Involved
    • CSR and Grants
    • Partners
  • Go Gold
    • WCDICCD-2022
    • Pledge Your Support
  • Contact Us