1. Every year 300000 children , 0-19 years of age, are diagnosed with cancer worldwide,

2. 70-80000 are in India. 

3. Survival Outcomes in HICs are 80-99%.

4. In India they range from as low as 20% in some centers to 85% in others.

5. But almost 60% children who may have cancer do not even make it to a cancer center anywhere.

6. Better treatment, care and support will raise survival outcomes to 60-65%. 

7.  But to get to global standards we must invest in research , quality care and impact assessment TODAY.

​8. The most immediate and critical areas of research today are healthcare policy and systems research, and to the development of guidelines and standards, to improve access to care, survival outcomes and quality of life of children
with cancer and their families in India.

QUALITY CARE

​WHO definition of QUALITY OF CARE is “The extent to which health care services provided to individuals and families improve desired health outcomes. In order to achieve this, health care must be safe, effective, timely, efficient, equitable and people-centred.”
Safe. Delivering health care that minimizes risks and harm to service users, including avoiding preventable injuries and reducing medical errors.
Effective. Providing services based on scientific knowledge and evidence-based guidelines.
Timely. Reducing delays in providing and receiving health care.
Efficient. Delivering health care in a manner that maximizes resource use and avoids waste.
Equitable. Delivering health care that does not differ in quality according to personal characteristics such as gender, race, ethnicity, geographical location or socioeconomic status.
People-centred. Providing care that takes into account the preferences and aspirations of individual service users and the culture of their community.

Cankids has adopted this as a Value statement to inculcate in our work and promote in the Childhood cancer healthcare space in India.

IMPACT ASSESSMENT


WHO defines HEALTH IMPACT ASSESSMENT as “a combination of procedures, methods and tools by which a policy, programme or project may be judged as to its potential effects on the health of a population, and the distribution of those effects within the population”.
  • To improve the quality of policy decisions by evaluating the likely positive and negative health impacts from proposed programmes or policies,
  • To make recommendations to improve positive health impacts and mitigate negative ones.
  • For participation of public stakeholders including our donors and
  • To provide for a social model of health and well-being in which there is an explicit focus on equity, sustainability and social justice, and a commitment to openness and public scrutiny.

Cankids is committed to measuring and promoting impact assessment to drive Change for Childhood Cancer in India

RESEARCH

Cankids is committed to research in-house & within the pediatric oncology community, including the IAP PHO InPOG* for multi center research, institutional research and research focused on  health systems and policy dimensions of childhood cancer in India.
 
QCRI conducts and/or facilitates all research projects being done within Cankids or national/international collaborative projects where Cankids is contributing patients or being a study sponsor. 
 
At any given time there are several small and large, single/multicentre studies underway. These studies have to all relate to children with cancer but are diverse in their methodologies (qualitative, clinical trial, epidemiological, survey, etc.) as well as in their scope (answering novel questions, setting/measuring standards, evaluating service, impact assessment, etc.)
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QCRI TEAM

Dr Ramandeep Arora
Honorary Head, Quality Care, Research and Impact Analysis, Cankids India, New Delhi
Senior Consultant, Paediatric Oncology, Max Super Speciality Hospital, New Delhi
Executive Committee Member and Epidemiology Group Chair, Indian Pediatric Oncology Group (INPOG)
childhoodcancer@gmail.com
http://childhoodcancerindia.blogspot.in/
 "I have done my initial paediatric training in India and then went to UK for further training in paediatric oncology and cancer epidemiology. Having spent 11 years there I moved back to India in 2013 and have joined Max Healthcare, New Delhi as a consultant paediatric oncologist and the Cankids QCRI Department as Honorary Head.. My main area of interest is childhood cancer with a specific focus on paediatric oncology in developing countries and childhood cancer epidemiology. I am also interested in understanding the phenomenon of refusal and abandonment in treatment of childhood cancer in developing countries and to develop interventions to deal with it."
Jennifer Lowe (L)
General Manager,
Quality Care Research & Impact Department,
​HQ

Rashi Tripathi (R) 
Manager ,Quality Care Research & Impact Program
HQ
Thanks to others who Contributed
Dr. Alexandra Martiniuk​
Dr. Himanshu Vats​
Dr. Puneet Arora
Shivani Ahuja 
William Joe
Dr. Amita Mahajan
Justine Behan
Rajen Mody
Srinath Mukherjee
Pooja Sharma.
Dr. Amitabh SIngh
Dr. Manas Kalra
Dr. Ruchira Misra
Stephanie Mardakis
Sandip Jariwala.
Dr. Argerie Tsimicalis
Neha Faruqui
Sara Lederman
Sumit Gupta
Dr. Vikramjit Kanwar
Dr. Hari Sankaran
Nirmalya Roy Moullick
Sashi Prabha
Trisha Paul
.
Thanks to Donors of QCRI 
​ DB FUND - St.Baldrick- Shavee events - IHS markitt 
Conquer Cancer Foundation
Jiv daya Foundation
 Golden Crab ALL Fund - Sajid Shapoo, Rubina Garg, Mallika & Krishang Raghuvanshi , Dr Manish Aggarwal
Sajeev RB Fund - Kanaka Sirpal 
Sohn Conference India
​Tata Trust

QCRI Partnerships