Quality Care & Research Impact Program
1. Every year 300000 children , 0-19 years of age, are diagnosed with cancer worldwide,
2. 70-80000 are in India.
3. Survival Outcomes in HICs are 80-99%.
4. In India they range from as low as 20% in some centers to 85% in others.
5. But almost 60% children who may have cancer do not even make it to a cancer center anywhere.
6. Better treatment, care and support will raise survival outcomes to 60-65%.
7. But to get to global standards we must invest in research , quality care and impact assessment TODAY.
8. The most immediate and critical areas of research today are healthcare policy and systems research, and to the development of guidelines and standards, to improve access to care, survival outcomes and quality of life of children
with cancer and their families in India.
2. 70-80000 are in India.
3. Survival Outcomes in HICs are 80-99%.
4. In India they range from as low as 20% in some centers to 85% in others.
5. But almost 60% children who may have cancer do not even make it to a cancer center anywhere.
6. Better treatment, care and support will raise survival outcomes to 60-65%.
7. But to get to global standards we must invest in research , quality care and impact assessment TODAY.
8. The most immediate and critical areas of research today are healthcare policy and systems research, and to the development of guidelines and standards, to improve access to care, survival outcomes and quality of life of children
with cancer and their families in India.
Quality Care
WHO definition of QUALITY OF CARE is “The extent to which health care services provided to individuals and families improve desired health outcomes. In order to achieve this, health care must be safe, effective, timely, efficient, equitable and people-centred.” Safe. Delivering health care that minimizes risks and harm to service users, including avoiding preventable injuries and reducing medical errors. Effective. Providing services based on scientific knowledge and evidence-based guidelines. Timely. Reducing delays in providing and receiving health care. Efficient. Delivering health care in a manner that maximizes resource use and avoids waste. Equitable. Delivering health care that does not differ in quality according to personal characteristics such as gender, race, ethnicity, geographical location or socioeconomic status. People-centred. Providing care that takes into account the preferences and aspirations of individual service users and the culture of their community. Cankids has adopted this as a Value statement to inculcate in our work and promote in the Childhood cancer healthcare space in India. |
Impact Assessment
WHO defines HEALTH IMPACT ASSESSMENT as “a combination of procedures, methods and tools by which a policy, programme or project may be judged as to its potential effects on the health of a population, and the distribution of those effects within the population”.
Cankids is committed to measuring and promoting impact assessment to drive Change for Childhood Cancer in India |
Research
|
Cankids is committed to research in-house & within the pediatric oncology community, including the IAP PHO InPOG* for multi center research, institutional research and research focused on health systems and policy dimensions of childhood cancer in India.
QCRI conducts and/or facilitates all research projects being done within Cankids or national/international collaborative projects where Cankids is contributing patients or being a study sponsor.
At any given time there are several small and large, single/multicentre studies underway. These studies have to all relate to children with cancer but are diverse in their methodologies (qualitative, clinical trial, epidemiological, survey, etc.) as well as in their scope (answering novel questions, setting/measuring standards, evaluating service, impact assessment, etc.) |
QCRI TEAM
|
Dr Ramandeep Arora
Honorary Head, Quality Care, Research and Impact Analysis, Cankids India, New Delhi Senior Consultant, Paediatric Oncology, Max Super Speciality Hospital, New Delhi Executive Committee Member and Epidemiology Group Chair, Indian Pediatric Oncology Group (INPOG) childhoodcancer@gmail.com http://childhoodcancerindia.blogspot.in/ "I have done my initial paediatric training in India and then went to UK for further training in paediatric oncology and cancer epidemiology. Having spent 11 years there I moved back to India in 2013 and have joined Max Healthcare, New Delhi as a consultant paediatric oncologist and the Cankids QCRI Department as Honorary Head.. My main area of interest is childhood cancer with a specific focus on paediatric oncology in developing countries and childhood cancer epidemiology. I am also interested in understanding the phenomenon of refusal and abandonment in treatment of childhood cancer in developing countries and to develop interventions to deal with it." |
|
Jennifer Lowe (L)
General Manager, Quality Care Research & Impact Department, HQ Rashi Tripathi (R)
Manager ,Quality Care Research & Impact Program HQ |
|
Thanks to others who Contributed
Dr. Alexandra Martiniuk |
Dr. Himanshu Vats |
Dr. Puneet Arora |
Shivani Ahuja |
William Joe |
Dr. Amita Mahajan |
Justine Behan |
Rajen Mody |
Srinath Mukherjee |
Pooja Sharma. |
Dr. Amitabh SIngh |
Dr. Manas Kalra |
Dr. Ruchira Misra |
Stephanie Mardakis |
Sandip Jariwala. |
Dr. Argerie Tsimicalis |
Neha Faruqui |
Sara Lederman |
Sumit Gupta |
Dr. Vikramjit Kanwar |
Dr. Hari Sankaran |
Nirmalya Roy Moullick |
Sashi Prabha |
Trisha Paul |
. |
Thanks to Donors of QCRI
DB FUND - St.Baldrick- Shavee events - IHS markitt |
Conquer Cancer Foundation |
Jiv daya Foundation |
Golden Crab ALL Fund - Sajid Shapoo, Rubina Garg, Mallika & Krishang Raghuvanshi , Dr Manish Aggarwal |
Sajeev RB Fund - Kanaka Sirpal |
Sohn Conference India |
Tata Trust |
QCRI Partnerships
|
|