Stigma, feelings of helplessness, lack of proper guidance, confusing medical terminology and procedures, uncertain futures - these and other stressors are deterrents to accessing childhood cancer care. CanKids helps children fighting cancer and their families overcome these hurdles through survivor-helping-survivor and parent-helping-parent activities. CanKids supports a family-centred approach, advocacy by patients and caregivers, and enables patient participation.
Patient Navigation, Advocacy, and Family Engagement Department supports and unifies patients, parents & caregivers and survivors for safeguarding their rights during treatment, in survivorship and bereavement.
- Patient Navigation at treating centres, and care coordination across centres, cities, and states. Includes YANA, YANA-Hold My Hand, Navya 2nd Opinions, outings, celebrations, gifts, Parent/Survivor Helping funds, and Disability Certificate Facilitation Service.
- Patient/ Parents & Caregivers and Survivors works for awareness and advocacy and participates in Researches
- They are involved in family engagement through patient education, Capacity & Skill Building that helps in their Reintegration and livelihood for both children and families.
KidsCan Konnect
'KidsCan Konnect' is made up of childhood cancer survivors who offer peer support, empower children with cancer and help them reintegrate with society, raise awareness on childhood cancer, advocate for the rights of children with cancer, and participate in late side effects research studies and projects.
Parents' Groups
'Path Pradarshak Parivarik Sahayak Group', or P3SG, is a group of parents who have experience with childhood cancer care become Patient Navigators/ Advocates for newly seeking treatment and families unknown to cancer. They work to spread awareness and raise their voices for the rights of children with cancer and their family.
District Parent Patient Navigators models of Patient Advocates contributes in ‘Access to Care’ by providing the referral pathways for the children suspected with cancer partnering with social and governmental networks.
District Parent Patient Navigators models of Patient Advocates contributes in ‘Access to Care’ by providing the referral pathways for the children suspected with cancer partnering with social and governmental networks.
Patient Advocacy Groups
Comprising Parents and Survivors of Retinoblastoma, Hodgkin’s Lymphoma and APML paediatric cancer registered in the Survivor and Parents groups of Cankids under the program of One Cancer at a Time for their specific advocacy.
Our Objectives
Patient Navigation, Advocacy, and Family Engagement aims to :
- Provide the Patient Centric Care keeping the patient at the centre of every aspect of childhood cancer and the other aspect of life.
- Build Patient Navigator/ Care Coordinators/District Parents Patient Navigators and Patient Advocate members and their group as a continuous process.
- Spread Awareness to reach every section of the society regarding the childhood cancer and stamp out the stigma from the society.
- Raise the Patient voices and represent the interest of children with cancer, parents, survivors and families to all stakeholders.
Survivorship means looking to the future and addressing the long-term concerns of children with cancer and their families.
To do this, we focus on four key areas:
To do this, we focus on four key areas:
Livelihood
Many parents may need to leave their hometowns and their jobs to seek cancer treatment for their children. We provide them opportunities to earn a livelihood through work like stitching, washing, ironing, and assembling kits for hygiene, COVID safety, and ration.
Reintegration
Our parent and survivor groups help children with cancer return to their normal lives by providing formal and informal educational during the course of treatment, as well as vocational training in order to confidently pursue work in their adult life.
Empowerment
We aim to up-skill and build the capacity of Patient Navigators, parents, and other family members of children with cancer. Our Girl Child Project also gives special focus to removing gender-based inequalities in accessing cancer treatment.
Fellowship
Through KidsCan Konnect (KCK), we offer survivors a chance to develop professional skills and habits through the opportunity of fellowship. Our goal is to create a pool of career-enhanced professionals.
Many parents may need to leave their hometowns and their jobs to seek cancer treatment for their children. We provide them opportunities to earn a livelihood through work like stitching, washing, ironing, and assembling kits for hygiene, COVID safety, and ration.
Reintegration
Our parent and survivor groups help children with cancer return to their normal lives by providing formal and informal educational during the course of treatment, as well as vocational training in order to confidently pursue work in their adult life.
Empowerment
We aim to up-skill and build the capacity of Patient Navigators, parents, and other family members of children with cancer. Our Girl Child Project also gives special focus to removing gender-based inequalities in accessing cancer treatment.
Fellowship
Through KidsCan Konnect (KCK), we offer survivors a chance to develop professional skills and habits through the opportunity of fellowship. Our goal is to create a pool of career-enhanced professionals.